GETTING THROUGH MOMENTS

Yes Peeps – I am still around…thanks for all those that sent messages…I am doing okay!!!

Just trying to set things straight in my head as to what direction I want to go in. I know it sounds like I am speaking in puzzles or code but I have very very nosey children and personally I would them rather not know what decisions I am fixing to make. None of them will be happy.

Personally they have A LOT of growing up to do….tired of the whining and complaining and thinking that they know it all…tired of trying to help only to turn around and getting kicked in the heart  for it. My hunnie and I actually agree fully that we are both tired of their garbage and we are DONE….stick a fork in us because we are so DONE!!!

House is still not done – FIGURES!! Tired of waiting on that too!! I guess we will start eating out for holidays too because I just do not have a kitchen to cook holiday meals in. BUMMER!

Still getting paid sporadically from WC – that also figures – Tired of trying to fight the system….I just do not have it in me anymore to fight for my pay or medications or anything!!!

Yes we are finally in the “NEW” computer/craft room…getting my craft area set up is running very slow but that is okay – I like having more room and I like the light so much better in this room (more windows)…and now my webcam shows the picture much more brighter and sharper – so I am a happy camper.

Over at my art blog I am posting every day for two challenges – one is NaBloPoMo and the other is Art Every Day Month… so stop by my art blog – FINDING MYSELF – and see what I am coming up with every day as a creation!!! This should be fun!!

This weekend is suppose to actually go down to 44 degrees – WOW – for Florida that is CHILLY COLD…I can’t wait..lol!
We deserve the cool weather – we deserve the cool off – it has just been too warm for too long here!

Well I just wanted to do a brief update  - sorry if I am speaking in code for some – for now – it is the only thing I can do…until certain things are in place!
THANKS SO MUCH for stopping by…REMEMBER to HUG those you LOVE….No One is guaranteed a tomorrow!!

PEACE

WELL…ALMOST

It has been the weekend of ALMOSTS….let me explain….
*We almost moved into the new puter room
*We almost had the satellite working in the new puter room
*I almost received my WC disability check
*The new kitchen cabinets were almost completed

So now here are the stories……We put my satellite box into the new puter room and hooked it up to my new hdtv flat screen TV…no matter what we tried (after three or more hours) we could not get the darn thing to work….it should have worked but then again- knowing the satellite company you would have to tell them you are changing rooms so that they can charge you for it. (I do not know that for a fact – but it would not surprise me).

We almost moved the stuffies from the old computer room to the new one but there was still a LOT of items from the new flooring and paint items that were still in the new room – so there was still too many things that had to be moved and cleaned – so the move did not take place.

I usually receive my WC disability check on Fridays – at the latest – it shows up in my bank on Saturday mornings---well no direct deposit on Friday so I just thought - “okay—I have to wait until Saturday”……we Saturday came and went and NOTHING….no deposit – now I am thoroughly annoyed…and a bit TICKED. So I thought - “okay-Monday morning it will be there” I was so WRONG…I then got on the phone to call the people in charge and sure enough---with a snippy attitude a rep said that I am actually NOT due a check until today Monday…so check my account after 12 noon….I am trying my best to remain calm – however…..at 3 pm I checked my account and NOTHING….NO DEPOSIT…..so I called my lawyer – trying to explain this to his legal assistant….and she says she will discuss the issue with him and get back to me – well it is just short of 5pm here and NOTHING…I am LIVID.

I am sick and tired of having to deal with the state and I promise you – that they are doing this on purpose so that I will settle out my case for a mere nothing so that they do not have to be responsible for my health care anymore. (the meds are about $650 a month at least – the oxygen is a couple of hundred a month and the doctor is an easy couple of hundred a month) (so they are paying dearly for destroying my lungs).  I am SO DONE… I am sure that the lawyer and his assistant got paid this past Friday – so they are in no rush because it does not personally affect them.

So that was my weekend of ALMOSTS …. I could have gotten more accomplished had I stayed in bed.

I am not bummed out actually – I know all things will come together – I just really dislike not getting things done!
However – I did get to watch some good football – looks like it is going to be a good season – I did manage to still create – so that kept my head busy – and I am still knitting away….and a bonus is I received more pictures of my grandchildren so that, of course, made me a happy camper.

THANKS for stopping by – Remember to HUG those you LOVE – because no one is guaranteed a tomorrow~!~

HERE'S TO YOUR HEALTH

You know that old quote that says "when life hands you lemons-make lemonade"?
Well I am drowning in lemonade.....enough already!!
Here is a short synopsis of just a portion of what is going on.....
my pulmonologist decided to give up accepting WC for patients - his practice is now
leaning towards education for the elderly-preventative care...so that left me in the lurch--after 10 years of going to this doctor - I had to have someone new--
WC did not like this - they wanted to find some sort of fault with me so that
could stop paying for my care.
Well it all came to a head in May because they wanted another deposition (I am thinking we might be heading back to court) so yes we are off to be questioned by lawyers...
the stress of this garbage really drove me so close to the edge - it seems always a game
and my lawyer claims this is just typical of the state and WC--that however is NOT reassuring
to me at all.I found their questions very interesting - some of the same - a lot of updating info...and you
can just tell that they wanted to make sure of who is in my house and what the outside of my
house looks like and who does what in my house....this is enlightening because last time
this info was hashed out - they had me followed for 6 months - they video taped who came
and went and lived in my house everyday for 6 months - what they failed to realize is that
the one person they swore was me was my sister in law - and that is the video tape they
turned into the court -but with my sister in law next to me in court - they lost
miserably - that was 8 years ago.Well this time the deposition was also held at the same time that my lawyer put
a complaint in against WC because they never did a doctor referral - which brings
me up to date - yesterday was that doctor appointment!!!
IT WAS A NIGHTMARE!!!!
I am suppose to be seeing a pulmonologist - that was court ordered, this
doctor is family practice no specialty - his wife is a pediatrician.
Apparently there are time that she sees his patients - and I saw no children there but
then again she was not there....but I am getting ahead of the story ---We walked in and the office had a smell to it and it was kind of warm in the waiting room--
I thought that was odd...I filled out the initial paperwork and this "nurse" asked if I had
all my paperwork from the other doctor with me - I said NO this is
WC they mail it to you for me - I am not allowed to go and transfer records-
she actually snubbed me and dismissed me and told me to go have a seat...unreal!
So when we went to sit down - they were a puff of dust that flew up--we were covered
in dust--the seats were covered in a thin layer of white dust (drywall dust), when we
looked over to the other side - the building is under construction...the place
was a hazard for anyone with respiratory problems!!I was really puzzled - then this one other lady who was waiting to be seen said to make ourselves comfortable because the wait time is pathetic and then said that the filth in this office
location is NOTHING compared to their other office in the next town....OMG - I could
not imagine anything worse.
She said to THANK GOD that we got to go to this office and if sent to the other one
find another doctor.This is before I even go into the asylum - I mean back patient area.
Well to save some time here -I will be brief - the exam rooms were disgusting - the paper on the patient tables are not changed between patients - the tables themselves have not been sterilized in a lifetime, there are holes in the walls with nothing but drawing paper covering
them with scotch tape.
Meantime - they had taken my vital signs and could not get an accurate reading
of my blood pressure - they had to put me on a electronic machine that takes
your blood pressure and the damn thing was squeezing the HECK out of my arm thatI actually screamed out--OMG it was incredible pain - that nurse said well I tried
to tell you that it was high - it is trying to get a reading - OMG I could not believe it.
Finally - I am in tears and the damn thing said that my BP was 221/109
well that freaked me out!
She brought me to some room -DISGUSTING-I called Allen to come back to my room.
I told him where I was at - he joined me and I filled him in on what happened so far.
Now when Allen was in the waiting room other patients told him that the least amountof time that anyone spends there is 4 hours...geez...and that the dr is a real A--H---!!
As a matter of fact - the other patients also said the same thing - they also said that
he tries to eliminate any use of medication for WC patients. He also will never address
issues of pain because he will not prescribe anything for pain...any kind of pain.
Now Allen was already in a bad mood because when we called for directions while
on the road - (the directions that my lawyer sent were wrong) the person
who answered the phone was really RUDE - not a good way to be to Allen on the phone..
so when he heard from these patients how nasty this doctor could be in attitude - that only
put Allen in a more nastier mood - he was ready for a fight.One lady said that her dad had an appointment with him and the dr tried to double talk and
eliminate meds that her dad knew he had to be on and the dr tried to mouth off on him and her dad picked up a chair and threw it - now when her dad shows up
he is taken directly back and seen quickly and then sent on his way - apparently also her dad
had waited several hours to be seen and was TICKED over it.
The dr talked about not getting paid if he prescribes certain things or requests certain tests.
I personally think that it is NOT professional to talk to a patient about whether or not
you get paid or your concerns over fees...that is between him and WC - that has nothing
to do with me.
He also wanted to know if I was collecting any money as my salary from WC - I also believe that is not professional nor any of his business.He also mentioned that he is going to be running a drug study for respiratory patients - and if after a PFT test (pulmonary function test) depending on my lung usage will determine
if I qualify for the research study (truly I have no interest). Now that last time
I saw my first pulmonologist - my lung function went from 11% to 71% but it took
8 years to get there - lots of trial and error and changes with meds...now I have been
without meds for a couple of months because WC took their sweet time finding another doctor
for me and the depo and all...my function test result was 36%. This is NOT good! Because
they took their sweet time getting me referred - 8 years of work almost completely disappeared.
Now I understand why I have been running out of breathe more then usual and why I am overly
exhausted - my body is having to work twice as hard just to breathe.This doctor wants blood work done and claims that I am probably diabetic
because I have been on steroids too long (three different steroids for 8 years) and
apparently steroids on long term usage causes diabetes. OMG something else I have
to worry about.
Well as he is leaving he wanted me to have my blood pressure taken again because it was
MUCH too high. They have you chew on this NASTY NASTY A-- medicine
that you have to suck the juices out of this pill tube.It was DIGUSTING - but I did it and they have you sit for a while for the med to take effect. Meanwhile I am watching all the activity taking place in the reception patient area - the hub of
the place - it was MASS confusion - lots of lost files, even the doctor was walking around
and asked this other patient and I what was he doing before he went in the other room.
One nurse was walking around trying to figure out what test to run on what patient next.
I have never seen such chaos before - it scared me.Finally after 20 minutes maybe a bit more they decided to take my BP again to see how the
meds worked....after crying again from the pain it was 225/125 - OMG it went up..
now they say I am fixing to stroke out and they HAVE TO bring it down quick - and again
I have to take that DAMN NASTY medicine again - the nurse bribed me with soda if I took it
again so I agreed - ( you need a gallon of anything after wards because it is SO BAD).
So now it turns out that I had to wait over an hour before they would take it again...
(did I mention that I had a RAGING headache all this time) I am in tears wanting to
leave so bad - I was hungry and have been there all day.....finally they took it again
and it went down to 198/95--so the doctor is happy and they let me leave...they gave me
prescriptions including a new one for my blood pressure. When Allen and I finally left we had been there from 10:30 to 4:00 - CRAZY!!We walked out and the waiting room was JAMMED packed....there was only standing room
and there plenty of people standing.
I was so happy that part of my day was done -We went to our favorite buffet place to eat and
to have an early celebration for Allen's B'day - alone time at last.
The food was good and then headed to the pharmacy to drop off the scripts...then finally home.
Unfortunately once I got home the rage in my headache returned - NOT GOOD...BP must have been going back up - So we called about the meds because they would be ready in an hour and we find out that there are problems with the meds -
WC refused to pay for the blood pressure meds - and two of the lung meds - I CANNOT BELIEVE THE GARBAGE I AM GOING THROUGH.So today we had to go get a copy of the scripts and fax them to my lawyer so that they
could put paperwork against WC again. This is getting old....the lawyer said that I would have
to wait until it is approved once the complaint is put in order to get my meds unless
I want to pay for them out of pocket and wait to be reimbursed - well that is NOT happening
because I do not have $115 to put up front...so now I have to wait. That money is only
for one prescription - there are two or three that were denied - I just do not have the
money!!! This is just not a good day!!!
BTW - we found out from one of the nurses that all the construction being done is because
there is BLACK MOLD inside the walls (the same garbage that made me sick years ago)
So Now I have caught you all up on my health adventures!Something has to give soon - because emotionally I do not think I can take much more!!
PLEASE if you have any advise I would love to hear it - I am just totally exhausted
having to deal with all of this!
Meantime - THANKS for sticking around long enough to read my story -
Remember to HUG those you LOVE - life is just too short!
PEACE~!~